vascular birthmarks foundation (vbf)

Dr. Rozell-Shannon
Founder and President

The AVM Center of New York at Lenox Hill recognizes the significant contribution that the Vascular Birthmarks Foundation, led by founder and President Linda Rozell-Shannon, PhD, has made for the advocacy of patients with vascular birthmarks and their support systems.

 

Dr. Rozell-Shannon’s advocacy work started with her daughter Christine Mary Shannon’s hemangioma journey in 1994. Today, Dr. Rozell-Shannon is able to use her PHD studies in education to assess the impact of hemangiomas on parental stress, work that has been used to support insurance appeals for families denied coverage.

 

Continuing her research and advocacy, Dr. Rozell-Shannon co-wrote an important book, Birthmarks: A Guide to Hemangiomas and Vascular Malformations, with her daughter’s physician, AVM Center surgical Director Dr. Waner.

Continuing the original patient advocacy goals since 1994, VBF has grown to become a leading non for profit for children and adults affected by a vascular anomaly, with chapters all over the world. Today, VBF successfully networks thousands of children and adults into treatment, sponsors significant research, and educates physicians and affected family members about the diagnosis and treatment of vascular birthmarks.

Vascular Birthmarks Foundation